Thursday, May 3, 2012

Someone you should know



This is something I have been wanting to write about for 9 years now.  Its always been there. Just never made it to pen and paper. I hope to do this story justice.  Because as you will soon read, it deserves that and so much more.

I want you to really think about who is a celebrity to you?
Someone who is in the movies?
Has a wonderful singing voice?
A man who helped his team make it into the World Series?
Oprah?



 Not to me. They are just the lucky ones. The chosen few that have great P.R. agents.
They land on a billboard and become someone by memorizing lines or have their voice altered by auto tune.

Is a person a celebrity because they can run faster or hit harder than another?



 In the world of reality t.v. Celebrity-ism is almost a joke.  Sorry Kim Kardashian, but if I were you I would hide in a box for awhile.  Please, go  feed the hungry and do something good with your 15 minutes of fame.

My father always taught me that you must earn respect, not ask for it.
You must do or be something amazing for me to give you celebrity statis.


It sort of goes hand in hand for me. You have to really make a difference for me to put you on a
 pedestal.
Do something.
Grand.
Life changing.
Significant and brave.

I would like for you to meet my friend James Anthony McDonnell.
Born into our world in 1960.
Jimmy as he is known by all has Down Syndrome.
Hard to imagine that in 1961 Jimmy would not have been brought home. He would have been forgotten.  Institutionalized and left.
Alone.

But God knew exactly who to give Jimmy to.
God blessed Jimmy to Cathy, his mother.

As I like to call her the fiercest, most amazing lady I have ever met.  Stronger than an ox in more ways than one.
You want to meet a survivor, a hero, then knock on her door. (That I will save for another day)

Jimmy was born and went home as a little baby boy.
"He had 10 fingers and 10 toes, and 2 eyes", said Cathy.

 No one said a word.
 No one questioned a thing.
Funny though that when Jimmy's uncle first met Jimmy he said  "Where did you get this Chinese baby?"  They laughed it off and Cathy went onto raise her child the best she knew how.  Jimmy just didn't develop quite like her sisters kids that were around the same age.  At about 6 months old Cathy brought Jimmy in to see their pediatrician.
After reading Dr. Spock Cathy knew something was wrong.

 The Dr. said "Just pray it isn't what I think it is", to which Cathy already knew.

Mongoloid.

Back in the olden days they referred to our children as Mongoloids. Due to the fact that their almond shaped eyes resembled those from Mongolia.
Since then much research and studies were found by a Dr. Down that gave insight and knowledge about the syndrome giving it the name today.

When a Dr. told Cathy that her son would never walk, never talk and never learn, she left.

Cathy joined one of the earliest DS groups around. There she found information and places to help Jimmy with his journey.
In the beginning of school  a teacher said that Jimmy would never learn. He may be trainable. But he will never LEARN.

Can you imagine?

Telling that to a mom of a 6 year old?

Professionals evaluate our children in a small time frame. In 2 hours they have the ability to tell us who and what our children will be.

Hell, I don't know who I am going to be and I am well over 6.

As I have also done, Cathy said "NOT MY CHILD!"

How can  you know him in 2 hours?

"I will show you and so will Jimmy."

Bam.

Jimmy went to school until the age of 22.  The day after he graduated he went to work.
His first job was at McDades warehouse. His siblings showed him how to ride the bus. After 2 days Jimmy was on his own.

I cannot imagine the strength that his mother must have had.

Jimmy also kept a busboy position at the local pizza joint on Saturday nights. He worked at Foxes pizza from 16-32 years old.

Jimmy's main career was at the Cook County Treasury Office.  He began as a temp. and is still employed there today.
Jimmy rode the Metra every day.

Alone.

This is where his love for reading began.
Jimmy would read both local papers daily.
Never missing a section.
A few times Jimmy actually did not get off at his regular stop because he was too entranced in his reading.

Jimmy loves to read.

When asked what his favorite section of the paper is he glows like a Christmas tree. "The sports section."
You will probably never catch Jimmy without a White Sox shirt or cap on.  Jimmy is without a doubt their biggest fan and always will be.
All sports that is. He loves the Sox, but the Bears and Bulls are all in the running.

I remember going to the Bulls game with Jimmy many years ago.  Jimmy had the pleasure to practice in advance with the players.
 Really?
I was honored to be sitting next to Jimmy as he spent the night talking with coaches and the Love-ables. Jimmy will tell you that he is a devout ladies man. "I am not a one women man", is a favorite among his lines.

I could go on forever about his achievements.
He is one of the very first Special Olympians.

Jimmy went to Ireland a few years back to lead the Olympians onto the field.
Jimmy loves to travel.
Jimmy loves to smile.And he sure loves to talk.

"I love people, all people". "I am happy go lucky, and I respect every ones feelings!"

Jimmy loves watching wrestling on television.
He loves the colors blue and green.
He likes meat, all meat especially Roast Beef!

Jimmy does not lack self confidence. "I like all people. Not half of the people. I'm a people person. I do things for people. I am very gregarious!" (yep he said that!)

One thing is for certain. Watching Jimmy with his mom is a site to see. Jimmy idolizes his mom. Who wouldn't.  Jimmy needs her as much as she needs him.  The respect is mutual, the love is immense.

Back in the day you would find Jimmy sitting at a neighborhood watering hole. Probably never bought his own beer. He sure loves the ladies. "Girls, I like them all, right mom?"

Cathy has rolled her eyes over a million times. Jimmy is quite a character. But the love is amazing.

I have spent a lot of time with Jimmy.  I often ask him "Whats it like to have Down Syndrome?"
The answers vary a tad. But he mostly mentions that "He is the same."
"I'm a normal guy. If you don't like me, walk away, keep walking and go home."

Jimmy's love for Nathaniel was instant. Jimmy met Nate soon after Nate was born.  I remember Jimmy smiling at Nate and saying "He looks like me!"

Jimmy is always telling me that Nate is just like him.  "Happy go lucky, runs around a lot and not different." We have the same personality and we make people happy."

Jimmy just loves.
He smiles.
He enjoys.
He reads.
He works.
He lives.

It was never easy.
No one will ever lie and tell you that.
Cathy and I have a bond.
 An unspoken connection.
She knows.
She really knows.
But she believed.

Jimmy is 51 years old.
Jimmy has had a wonderful life.
One that has impacted many people.
He has given to society and he has made many smile.

Jimmy is my celebrity.
Always will be.


But his mom,
well she is my hero.





Sunday, April 15, 2012

What a night!

I will try my best to not get all cliche' on  all of you this morning...The damn Hallmark card sayings are oozing right out of my pores.

Wow- what a night.

Amazing.
Magical.
Moving.
Neighborhood.
Lasting.
Changing.
Friends.
Acceptance.
Gratitude.
Spiritual.
Loving.
Giving.
Emotional.

You know there is more...So much more.

Moments are embedding so deep-
I know the moments were not all shared. I wish they could be.  So you would all know just how amazing moments were last night.

Since we don't wear badges or letters on our foreheads you would not know all the parents of 'Special' children that stopped by.

They were the ones grinning from ear to ear. Taking in deep breaths filled with great pride and astonishment.

Our community rallied.

Not for me.

But for them.

EVERY ONE OF THEM.

They knew it- they felt it. They saw it and it was inspiring.

We know our road is a different one.

We know that times are tough, difficult and at times, painful.

But in between all those layers, lies pure radiant lasting love.

I have been touched.
I have been changed.
Forever.

The amazing food you had last night was made with awareness.
 By an amazing chef by the name of Alvin whose son has Autism. 
He is OBama's caterer...
But that means nothing to me.
Alvin is a dad.  A 'special' dad.
Now THAT speaks volumes.

His kindness and generosity poured out from his soul.
 He gets it. 
He lives it.
And he shared that with me.
He shared that with everyone.

Did you notice the beautiful ladies that sold you your t-shirts? 
The owner of Sweet Freaks and our State Rep....Yep- you heard me.
 Our STATE REPRESENTITIVE:~)

Donating their time, their moments to be shared with us.

We had Doctors and lawyers and company execs...but they had no business agenda.
 Not last night.

They did something so much more that operate or file taxes.
They filled the room with CELEBRATION.


Celebrating acceptance through awareness.

You were apart of something big last night.
Not just a party with fantastic Martini's.
 But the beginning to greatness.
A new way to celebrate differences.

I am not here to educate you on chromosomes or low muscle tone.
I am hear to say that "It is what it is" and its time to accept.

Celebrate the moments that we are given.

Tangible,
 Bright,
 friggen technicolor moments that we all receive from these kids.

OUR kids.
Kids of the community.
Kids of the world.

I am merely a mom.

Walking the walk and talking the talk.

I am humbled and grateful as I sit here today.
Wishing maybe that I had one less beer (OK, maybe 4 less)...

Glowing from the warmth.

Tickled from the friends that came from near and far. (Yes- that was me, speechless as a long lost friend from 30 years ago came..and yes I am still smiling.)

There wasn't enough time to talk, to say thank you , to hug and embrace.

But you all know me.
You know how I roll.
Honest,
Raw,
Heartfelt
Greatful
Peace
Love
Loud
Glittering~
understanding.
Happiness.

From the very friggen bottom of my bursting over with pride heart.



                         
                                                                      Thank you







Thursday, April 5, 2012

kindness-nice and short!

Random acts of kindness.

Does anyone remember the Oprah episode where she gave some audience members $100.00 and asked them to pay it forward?

I do.
Vividly.

I loved that episode.
I thought about it for a long time.
A very long time.

One person took the $100.00 and  paid for strangers coffee all day.
I tried that- I have paid the toll for someone behind me.
It felt good for 30 seconds.
Nothing lasting.




 Then there was someone who took the $100.00 and merely 'asked' her community to do the same. To dig as deep into their pockets as they could, comfortably.

Or give a service.

She knew of a  family facing gigantic struggles.  I  believe the sole bread winner of their household was deteriorating from a deadly Cancer.

She just reached out.

She just asked.

I met a women like her recently.
Actually I have met hundreds of people like that.

Someone that understands that they have been blessed.
Blessed  with more.
More than their fair share.
Yes-
They worked very hard to get  where they are.
But they are aware of their blessings.
In a moment it could all be gone.

They get that.

So to truly enjoy their great wealth they pass it on.  Giving pieces of it away.
Maybe not with money but with  moments.

This one audience member used her $100.00 to contact the neighborhood, make flyer's and have them sent out.
Thank God I was sitting.

That one women raised $50,000.00 in the one week.
Yep you heard me.

Couldn't erase the pain from the struggling family.

But damn it sure did lift 5o thousand dollars of burden that they were facing.

As I sit here thinking about Easter ~
I am reminded of the Easter eggs , the new clothes bought for church and the expensive brunch..

It has me thinking.

What if,

Come on,

What if,
my beautiful friend that always donates
 her voice and her guitar to my events!

We ALL took a little bit of something we had extra.

Time,

Money,

Knowledge,

Kindness,

Some of my friends who donate their
time to work my I AM WHO I AM events!

Ability,

Words,

Love,

And payed it forward.

What if......

Oprah's gone.

But we're not.

We are still here.

We can pay it forward.

Seriously,
    take a minute,

and
just
IMAGINE.

Now~ after you have imagined the GREATNESS.
Stand up and make a difference.
We can,

we will.

Now.

Tuesday, April 3, 2012

new directions


New directions

I remember reading years ago about women changing paths.
It was in every magazine I picked up. From Lady's Home Journal to Cosmopolitan. Women with influential jobs changing directions.
Changing careers in a blink of an eye. Jumping off the edge into uncharted territory.

Kinda like me.

I AM WHO I AM


I am trying to keep my eyes open. It feels as though I am sky diving naked with my eyes glued shut. Scared of falling, of failing and of public humiliation (That's if the naked part is actually real).

I remember thinking "Wow- that could be me" ~"these women are nuts" and "how would you know what road to take"?

These were high powered women, Doctors, lawyers , bankers, movers and shakers. One day they just threw caution to the wind, walked out of their costume and did something that they had passion for. (Damn I love that word "PASSION")

Okay, some went into crazy directions....Hmmm, crazy?

Not to them.

There was the millionaire that became a soybean farmer. She used her crops to feed the hungry. A doctor that left her practice to quilt. She sent her blankets to 3rd world countries.
Crazy?
Maybe not at all.

I have a friend that claims he has no real passion. Yuck, I would rather sleep all day. A life without passion is a life without raw joy. Passion has so many meanings, so many directions, so many ways to bend.

I am actually passionate about others passion.
Imagine that.
Think about that.

What brings more pleasure to your soul than seeing and feeling someone doing something that they live for. It pours out of their being. When passion hits the heart it explodes like dynamite. It brings life and great dimension to everything you see, touch and taste.

Seems like yesterday,

Ugh-30 years ago when I stepped foot into the Beauty field I was a reckless teen unaware of my true passion. I loved fashion, hair, make up and glitter. It kept my batteries charged for years. I was enjoying my 15 minutes of fame. Standing tall on platforms across the country. Telling people that wanted to hear, how to achieve "IT"...
Hahaha,
But what was "IT"?

Beauty is in the eye of the beholder.
Beauty from the outside can be robbed in an instant. At a young age, beauty can be destroyed my something as simple as acne. Beautiful hair, can be cut. Beautiful clothing goes out of style.

But a beautiful heart will last a lifetime.

My persona as many of you believe is covered in glitter.
Yes it certainly is.
That is the daily make up I choose to wear. But if you take a second and chisel the top layer off you will see someone that is exactly like you.

I am changing.
Changing my path.
The beauty world is a lovely place...
Just not as lasting as I had hoped 30 years ago.

This new path has been set before me. It was a teeny tiny fork in the road. Thank God my eyes were open so I could see the direction.

I don't think I even had a choice this time.
I don't think I even gave it much thought. I just rolled into this.
Morphed into "HER".

All I know today is that I like "Her"....She truly is a work in progress.
I believe that 'she' will do great things.
'She' will change lives and change minds.


I will always have my doubters. ( I live among many)..But that just fuels my fire.

Tell me I can't.
Oh, I WILL.
Tell me "I won't.
Oh, I HAVE.
Tell me that you don't BELIEVE.

See ya'.

Monday at 2:20 p.m. Chicago time I will be interviewed live on the Family Balancing Act Radio show.
I have been allotted 20 minutes. Good luck containing me.
I see a regular spot in my future.

Maybe I'm not in Good House Keeping yet-
But keep your subscriptions renewed.
I am on my way.

Bam.